You have the power to advance treatments
Contribute to multiple studies for your (or your loved one’s) rare condition without leaving home.
Participants on the platform
Patient advocacy partners
Join the leading research platform dedicated to rare disease
Receive your (or your loved one's) medical records, view your care journey and see what research you’re contributing to — all in a secure online account, at no cost.
How it works
1. Sign up
In just 15-20 minutes, create your private account, authorize us to get to work on your behalf and share the names of your health facilities. No appointments, no uploads.
2. We get to work
The AllStripes team does the work to collect your records, at no cost, in your secure account. Access doctors’ notes you may have never seen and view your care journey.
3. Power research
Our team de-identifies your records by removing information like name and address, and analyzes your community’s data to help jumpstart or speed up new treatment research.
More information for:IndividualsFoundationsLife sciences
Benefits to joining
Power to the patients
Have a voice in research
Your de-identified records, and your input through surveys, can help guide treatment research.
Access your medical records
We collect your records, at no cost, in your secure account. View doctors’ notes and your care journey.
Learn from your community
Receive updates on your research impact.
What our community is saying
I joined AllStripes to help provide a more comprehensive view of SCD, reduce stigma and accelerate the development of treatment options.
I joined AllStripes to help provide a more comprehensive view of the effects and complexities of SCD, and also to help reduce the stigma we face and accelerate the development of cures and treatment options.
community builder and founder of Sikcell
I joined AllStripes to be a part of a community of people who are brought together by the willingness and drive to make an impact.
advocate who lives with achondroplasia
I joined AllStripes because they can empower patients to take control of their health care.