Upcoming & past events

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ALD research program sign-up walkthrough

October 5, 2021
Oct 5
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Webinar
Online
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What’s next? Rare health planning in a changing COVID world

June 30, 2021
Jun 30
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Webinar
Online
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The PSP Chronicles: A book reading with Tim Brown

May 27, 2021
May 27
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Webinar
Online
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Q&A: Tim Brown & Radha Patel, PSP research program

May 17, 2021
May 17
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Webinar
Online
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The CLA patient & caregiver journey: A panel discussion

May 12, 2021
May 12
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Webinar
Online
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The importance of a natural history study

April 7, 2021
Apr 7
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Webinar
Online
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Kleefstra syndrome research program webinar

January 6, 2021
Jan 6
–
  
Webinar
Online
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Complex lymphatic anomalies (CLA) research programs webinar

December 22, 2020
Dec 22
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Webinar
Online
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SLC6A1 research program webinar

August 12, 2020
Aug 12
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