The CLA patient & caregiver journey: A panel discussion
AllStripes is proud to partner with LGDAlliance to further rare disease research. This webinar provides AllStripes' partners and ambassadors with a space and platform to share their experiences, advocacy efforts, and wisdom as members of the rare disease community. The panel chats about individuals joining larger communities, how to advocate for yourself, and the evolution of care.
Specific CLA conditions include the following: Central Conducting Lymphatic Anomaly (CCLA), Generalized lymphatic anomaly (GLA), Gorham-Stout disease (GSD) and Kaposiform lymphangiomatosis (KLA).
AllStripes is a platform that makes it easy for rare disease patients and caregivers to contribute to drug development research from home.
AllStripes improves the speed and design of drug trials by extracting and analyzing research-grade data from de-identified medical records, creating a pool of new knowledge about each rare condition.
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