Your experience with rare disease is important
With AllStripes, contribute to research for your (or your loved one's) condition without leaving home. Receive your digitized medical records in a secure account, at no cost.
Search active research programs
Participants on the platform
Patient advocacy partners
1. Sign up
In just 15-20 minutes, create your private account, authorize us to get to work on your behalf, and share the names of your health facilities. No appointments, no uploads.
2. We get to work
The AllStripes team does the work to collect your records, at no cost, in your secure account. Access doctors’ notes you may have never seen and view your care journey.
3. Power research
Our team de-identifies your records by removing information like name and address, and analyzes your community’s data to help jumpstart or speed up new treatment research.
Benefits to joining
Power to the patients
Have a voice in research
Your de-identified records, and your input through surveys, can help guide treatment research.
Access your medical records
We collect your records, at no cost, in your secure account. View doctors’ notes and your care journey.
Learn from your community
Receive updates on your research impact.
I joined AllStripes to help provide a more comprehensive view of the effects and complexities of SCD, and also to help reduce the stigma we face and accelerate the development of cures and treatment options.
community builder and founder of Sikcell
I joined AllStripes to be a part of a community of people who are brought together by the willingness and drive to make an impact.
advocate who lives with achondroplasia
I joined AllStripes because they can empower patients to take control of their health care.