team work

AllStripes' mission is to unlock new treatments for people affected by rare disease

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“Rare disease drug development can feel like exploring a new world without a map. We can help clear a path by contributing to a deep understanding of each condition from the very beginning.”
nancyyu

Nancy Yu
CEO and Co-founder, AllStripes

WHAT WE DO

We advance rare disease treatments through an end-to-end, global research platform

Including patient engagement, clinical development, regulatory, medical affairs, health economics and outcomes research (HEOR), and commercial needs.

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THE PLATFORM

Flexibility for every program

The two-sided AllStripes platform drives an integrated patient engagement and evidence generation strategy, and end-to-end study planning. Our standardized data modules help to reveal deep insights, all on a regulatory-compliant database and software platform.

platform

RARE DISEASE EXPERTISE

We’re building the playbook

We created a standard e-consent and research protocol to help characterize natural history and the burden of illness, and understand the comprehensive, longitudinal patient journey. This strengthens our methodology and protocol development.

expertise

TRANSPARENT PARTNERSHIP

We learn alongside our partners

We are relentless problem solvers, who respond fast to curveballs. We admit when we don’t know the answer (yet). We share our learnings openly and collaboratively.

puzzle

PATIENT COMMUNITY

Engaged community ready to help

Our team and patient platform bring value to patients and families by providing access to their records and ongoing research updates. We can seamlessly recontact patients for future studies and surveys. We include the patient and caregiver voice in all of our projects.

community
“We create order out of the chaos that is patient medical records and are able to generate novel insights to advance rare disease treatment.”
caitlinnichols

Caitlin Nichols, PhD
Research Director

OUR RESEARCH

Explore AllStripes’ recent research with our patient community

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Patient identification

Identifying gaps in access to research in patients with rare diseases using a real-world data platform

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Natural history for clinical development and regulatory

Development of a real-world evidence platform for MPS Type III (Sanfilippo Syndrome)

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Real-world management and outcomes

Development of a robust real-world data platform for rare diseases

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“Partnership is at the core of everything we do. Our work unites families and advocates with researchers and decision-makers — driving forward real progress.”
radhapatel

Radha Patel
Life Sciences Partnerships Director

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