Our AllStripes partners

Patient advocacy organizations

Alliance to Cure Cavernous Malformation

Allo Hope Foundation

CLOVES Syndrome Community

Children’s Tumor Foundation

Cure GM1 Foundation

Cure Mito Foundation

Cure Sanfilippo Foundation

Cure VCP Disease, Inc

Cystinosis Research Network

Dreamsickle Kids Foundation

Fabry Support & Information Group

Galactosemia Foundation

International Foundation for CDKL5 Research

International Society for Mannosidosis and Related Diseases

Kabuki Syndrome Foundation

Love Never Sinks

Lymphangiomatosis & Gorham’s Disease Alliance

Metabolic Support UK

Mississippi Metabolics Foundation

Morquio Community

Myositis Support & Understanding

NF2 Biosolutions

National Tay-Sachs & Allied Diseases Association

Organic Acidemia Association

PSP & CBD Foundation

Priest Family, Patient Advocates

Sarcoidosis of Long Island

Sickle Cell Reproductive Education Directive (SC RED)

Stronger Than Sarcoidosis

The Chandler Project

WonderFIL Smiles

Life science partners

HemoShear Therapeutics

Novartis Pharmaceuticals Corporation

The Orphan Disease Center

Key opinion leaders

Columbia University

Elizabeth Berry-Kravis

Rush University Medical Center

Forbes D. Porter

Johns Hopkins Medicine

Jenny Despotovic

Baylor College of Medicine

Lundquist Institute

Michele Lambert

Children’s Hospital of Philadelphia

Nicholas Silvestri

University at Buffalo

Pushpa Narayanaswami

Beth Israel Deaconess Medical Center

Boston Children’s Hospital

Reza Seyedsadjadi

Consultant - Assistant in Neurology MGH

Johns Hopkins Medicine