AllStripes allows me to connect with others in the PSP community and be on the forefront of new research.
Gary
,
PSP Ambassador
AllStripes allows me to connect with others in the PSP community and be on the forefront of new research.
Gary
,
PSP Ambassador
I joined AllStripes because they are putting patients first.
Tim
,
PSP Ambassador
It’s tough when research doesn’t deliver. I joined AllStripes because they get things done.
Diane
,
PSP Ambassador
I joined AllStripes because I believe in HOPE. Hope that there will be a cure. Hope there will be medication. Hope I get better.
James
,
PSP Ambassador
AllStripes is patient-driven, to help improve treatments in finding a cure for rare diseases.
Dayna
,
PSP Ambassador
By giving medical history to researchers through AllStripes, a piece of information may trigger something that can help someone else.
Mary
,
PSP Ambassador
I hope to help family members get closer to a diagnosis and to help get them the support they may need.
By joining AllStripes I can contribute my knowledge and experiences of taking care of someone with PSP. I hope to help family members get closer to a diagnosis and to help get them the support they may need.
Sylvia
,
caregiver for her mother, who lived with PSP

152

/

300

Research participants
needed
Help reach this goal to jumpstart the research program! More participants can join at any time to make research even stronger.
The first recruitment goal has been met! But we encourage more participants to join to make this research as strong as possible.

Be part of the AllStripes program for

PSP

progressive supranuclear palsy

Your experience with
PSP
is important and can help researchers advance treatments for your community.
By joining AllStripes, you can contribute your de-identified medical records to multiple research efforts for
PSP
without leaving home. We do the work to collect your information, and you’ll receive all your records in your secure account, at no cost.

Contribute to multiple PSP research efforts by joining AllStripes.

The first research project is designed to enable UCB, a global biopharmaceutical company, to better understand the natural history and progression of PSP.

Contribute your medical records, or those of a loved one in their memory. We collect and de-identify all records, which you can access at no cost.

Our partners for this research program

Active research studies

No items found.

Benefits to joining

Power to the patients

Benefits to joining

Have a voice in research

Your de-identified records, and your input through surveys, can help guide treatment research.

Access your medical records

We collect your records, at no cost, in your secure account. View doctors’ notes and your care journey.

Learn from your community

Receive updates on your research impact.

How it works

1. Sign up

In just 15-20 minutes, create your private account, authorize us to get to work on your behalf, and share the names of your health facilities. No appointments, no uploads.

2. We get to work

The AllStripes team does the work to collect your records, at no cost, in your secure account. Access doctors’ notes you may have never seen and view your care journey.

3. Power research

Our team de-identifies your records by removing information like name and address, and analyzes your community’s data to help jumpstart or speed up new treatment research.

AllStripes FAQs for patients and caregivers

Privacy and data ownership

AllStripes Research is approved and monitored by an independent ethics review board called WIRB (Western Institutional Review Board). WIRB is a group of people who review research studies to protect the rights and welfare of human subjects. They provide in-depth regulatory expertise to support development of research protocols and documentation. Read more.

Access your records, drive research

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