You have the power to advance rare disease treatments.
With AllStripes, be part of multiple studies for your (or your loved one’s) condition without leaving home. Receive your complete medical records and exclusive research updates – all at no cost.
RESEARCH PROGRAMS
Find your rare disease program
If you don’t see your condition listed,
How sharing your journey powers progress
Jumpstart new research for your rare disease
Your (or your loved one’s) medical records contain clues that can lead to new treatments.
Determine important symptoms to target
AllStripes researchers learn from patient records what would truly improve quality of life.
Speed up development of treatments
Using cutting-edge tech we analyze your community’s data to improve trial design and chances of success.
Be part of multiple research efforts, without leaving home
Your community’s de-identified records can advance multiple treatment studies.
BENEFITS TO JOINING
What you’ll get along the way
Access your records
We do the work to collect all your records, at no cost, in your secure account. Access doctors’ notes you’ve never seen.
Learn from your community
See how your rare disease journey compares to others with your condition, and what’s helping.
Track your impact
We’ll send you exclusive updates on the studies you’re contributing to and how you’re driving forward research.
Our story
Onno Faber (Founder) & Nancy Yu (CEO)
AllStripes’ mission is to empower patients and communities to accelerate drug development for rare diseases. About 1 in 10 people have a rare disease, and half are children.
AllStripes (formerly RDMD) was co-founded in 2017 by CEO Nancy Yu and Onno Faber, a rare disease patient deeply frustrated by the drug development process.
“I was diagnosed with a rare genetic disease and it completely changed my perspective,” Onno shares. “Patients can’t be bystanders in drug development.”
As the first and only research platform dedicated to rare diseases, AllStripes makes it easy for patients to contribute to new treatment studies from home. We do the work to collect and analyze your de-identified medical records to help power faster, better drug development for your condition.
The name AllStripes was inspired by the official symbol for the rare disease community, the zebra. When we come together and learn from each other’s experiences we can push for better treatments across all rare conditions.
Our team
Onno Faber
Founder, Chairman
Nancy Yu
Co-founder and CEO
Leo Vandriel
Head of Engineering
Charlene Fernandez
Patient Operations Lead
Brenda Simpson
Clinical Abstraction Lead
Kristina Cotter, PhD, CGC
Research Director
Bernard Xie
Software Engineer
Brett Chung
Head of Product
Talea Miller
Head of Content and Brand Marketing
Kevin Yao
Software Engineer
Lydia Kats
Software Engineer
Alyssa Carlson
Clinical Information Associate
Stephanie Fischer
Patient Advocacy and Partnerships Director
Maya Lila
Software Engineer
Melissa McLean
Design Director
Sierra Roth
Executive Assistant and Office Manager
Caitlin Nichols, PhD
Scientific Affairs and Research Manager
Geo Guidetti
Software Engineer
David Mayer
VP Operations
Angela Jocson
Project Manager
Evan Snyder
Software Engineer
Zainab Yusuf
Operations Associate
Eugenio Oddone
Software Engineer
Nehan Nadeem
Operations Associate
Radha Patel
Life Sciences Partnerships Director
Vanessa Bell
Software Engineer
Vivian Banh
Operations Associate
Dione Kobayashi, PhD
Scientific Advisor
Gregory Enns, MD
Medical Advisor
Jill Hagenkord, MD, FCAP
Medical Advisor
Caitlin Collins
Advisor
Tristen Moors
Clinical Operations Advisor
Brian Irwin
Advisor
Matt Wilsey
Patient Advocacy Advisor
Join our team
We are determined to build a strong company around our mission, and be able to invest in as many diseases as we can to generate better outcomes for patients. We work as a team, help each other to be the best version or ourselves, promote open communication, learn from our mistakes, and do good in the world.
Account Executive
Business Operations Associate
Business Operations Manager
Director of Operations
Epidemiologist
Lead Product Designer
Life Sciences Partnerships Manager
Operations Associate
Project Coordinator
Rare Disease Clinical Abstractor (Part Time, Remote)
Research Compliance Manager / Director
Research Partnerships Director
Scientific Affairs Manager
Senior Product Designer
Senior Product Manager
Senior Product Manager - Growth
Senior Software Engineer
In the news
It’s official, RDMD has a new name: AllStripesPress Release,September 15, 2020
Digital Health 150: The Digital Health Startups Transforming The Future Of HealthcareCB Insights,August 13, 2020
100 of the Most Inspiring PeoplePharmaVOICE,August 1, 2020
Abundant funding, sparse data: San Francisco startup backs ‘real world’ model for rare disease drug developmentEndpoints News,April 16, 2020
RDMD Lands $14M to Expand Reach of Rare Disease Research PlatformXconomy,April 16, 2020
