RESEARCH PROGRAMS

Find your rare disease program

We are working hard to add new conditions each month.

If you don’t see your condition listed,

How sharing your journey powers progress

Jumpstart new research for your rare disease
Your (or your loved one’s) medical records contain clues that can lead to new treatments.
Determine important symptoms to target
AllStripes researchers learn from patient records what would truly improve quality of life.
Speed up development of treatments
Using cutting-edge tech we analyze your community’s data to improve trial design and chances of success.
Be part of multiple research efforts, without leaving home
Your community’s de-identified records can advance multiple treatment studies.

BENEFITS TO JOINING

What you’ll get along the way

Access your records

We do the work to collect all your records, at no cost, in your secure account. Access doctors’ notes you’ve never seen.

Learn from your community

See how your rare disease journey compares to others with your condition, and what’s helping.

Track your impact

We’ll send you exclusive updates on the studies you’re contributing to and how you’re driving forward research.

Join now

Our story

Onno Faber (Founder) & Nancy Yu (CEO)

AllStripes’ mission is to unlock new treatments for people with rare disease. About 1 in 10 people have a rare disease, and half are children.

AllStripes (formerly RDMD) was co-founded in 2017 by CEO Nancy Yu and Onno Faber, a rare disease patient deeply frustrated by the drug development process.

“I was diagnosed with a rare genetic disease and it completely changed my perspective,” Onno shares. “Patients can’t be bystanders in drug development.”

As the first and only research platform dedicated to rare diseases, AllStripes makes it easy for patients to contribute to new treatment studies from home. We do the work to collect and analyze your de-identified medical records to help power faster, better drug development for your condition.

The name AllStripes was inspired by the official symbol for the rare disease community, the zebra. When we come together and learn from each other’s experiences we can push for better treatments across all rare conditions.