You have the power to advance rare disease treatments.
With AllStripes, be part of multiple studies for your (or your loved one’s) condition without leaving home. Receive your complete medical records and exclusive research updates – all at no cost.
RESEARCH PROGRAMS
Find your rare disease program
If you don’t see your condition listed,
How sharing your journey powers progress
Jumpstart new research for your rare disease
Your (or your loved one’s) medical records contain clues that can lead to new treatments.
Determine important symptoms to target
AllStripes researchers learn from patient records what would truly improve quality of life.
Speed up development of treatments
Using cutting-edge tech we analyze your community’s data to improve trial design and chances of success.
Be part of multiple research efforts, without leaving home
Your community’s de-identified records can advance multiple treatment studies.
BENEFITS TO JOINING
What you’ll get along the way
Access your records
We do the work to collect all your records, at no cost, in your secure account. Access doctors’ notes you’ve never seen.
Learn from your community
See how your rare disease journey compares to others with your condition, and what’s helping.
Track your impact
We’ll send you exclusive updates on the studies you’re contributing to and how you’re driving forward research.
Our story
Onno Faber (Founder) & Nancy Yu (CEO)
AllStripes’ mission is to unlock new treatments for people with rare disease. About 1 in 10 people have a rare disease, and half are children.
AllStripes (formerly RDMD) was co-founded in 2017 by CEO Nancy Yu and Onno Faber, a rare disease patient deeply frustrated by the drug development process.
“I was diagnosed with a rare genetic disease and it completely changed my perspective,” Onno shares. “Patients can’t be bystanders in drug development.”
As the first and only research platform dedicated to rare diseases, AllStripes makes it easy for patients to contribute to new treatment studies from home. We do the work to collect and analyze your de-identified medical records to help power faster, better drug development for your condition.
The name AllStripes was inspired by the official symbol for the rare disease community, the zebra. When we come together and learn from each other’s experiences we can push for better treatments across all rare conditions.
Our team
Nancy Yu
Co-founder and CEO
Leo Vandriel
VP of Engineering
Charlene Fernandez
Director of Patient Operations
Brenda Simpson
Clinical Abstraction Lead
Kristina Cotter, PhD, CGC
Senior Research Director
Brett Chung
Head of Product
Talea Miller
Head of Content and Brand Marketing
Kevin Yao
Lead Software Engineer
Lydia Kats
Software Engineer
Alyssa Carlson
Operations Associate Manager
Melissa McLean
Design Director
Sierra Roth
Executive Assistant and Office Manager
Caitlin Nichols, PhD
Research Director
Geo Guidetti
Lead Software Engineer
Angela Jocson
Project Manager
Evan Snyder
Software Engineer
Eugenio Oddone
Software Engineer
Nehan Nadeem
Operations Associate
Radha Patel
Life Sciences Partnerships Director
Vanessa Bell
Software Engineer
Vivian Banh
Operations Associate
Trevor Radcliffe
Software Engineer
Ashkan Motamedi
Senior Product Manager
Dane Zink
Recruiting Lead
Ana Fong-Jackson
People Operations Manager
Michelle Agee
Research Ethics & Compliance Director
Jon Oropeza
Senior Engineering Manager
Eric Lavin
Business Development Director
Sean Hill
Business Development Manager
Cathryn Herbst
Senior Product Manager
Shannon Rego O’Rourke, MS, CGC
Scientific Affairs Manager
Phillip Prescher
Senior Security Engineer
Karen Tran
Operations Associate
Collin Rich
Director of Operations
Rich Elles
Senior Project Manager
Diana Merino Vega, PhD
Research Partnerships Director
Cecilia Silvestre
Senior Product Designer
Samantha Fortuner
Project Manager
Gina Pham
Operations Associate
Ana Blackburn
Operations Associate
Caitlin Collins
VP of People and Operations
Taylor Kane
Social Media Manager
Germán Scipioni
VP of Product
Marina Snyder
Senior Brand Designer
Brian Tucker
Software Engineer
Sam Miller
Data & Analytics Manager
Grace Gannon
Operations Associate
Erin Smith
Senior Patient Engagement Manager
Sunny Lee
Senior Technical Recruiter
Travis Tate
Senior Sourcer
Ashley Ramos
Senior Recruiting Coordinator
Helen Thong
Operations Associate
Andy Pease
Principal Product Designer
Dione Kobayashi, PhD
Scientific Advisor
Gregory Enns, MD
Medical Advisor
Tristen Moors
Clinical Operations Advisor
Brian Irwin
Advisor
Matt Wilsey
Patient Advocacy Advisor
In the news
AllStripes expands rare disease research programs to United KingdomPress Release,February 12, 2021
AllStripes Announces Collaboration with Taysha Gene Therapies for SURF1-Associated Leigh Syndrome ProgramBusiness Wire,January 4, 2021
AllStripes Announces Partnership with Penn’s Orphan Disease CenterBusiness Wire,October 26, 2020
It’s official, RDMD has a new name: AllStripesPress Release,September 15, 2020
Digital Health 150: The Digital Health Startups Transforming The Future Of HealthcareCB Insights,August 13, 2020
100 of the Most Inspiring PeoplePharmaVOICE,August 1, 2020