RESEARCH PROGRAMS

Find your rare disease program

We are working hard to add new conditions each month.

If you don’t see your condition listed,

How sharing your journey powers progress

Jumpstart new research for your rare disease
Your (or your loved one’s) medical records contain clues that can lead to new treatments.
Determine important symptoms to target
AllStripes researchers learn from patient records what would truly improve quality of life.
Speed up development of treatments
Using cutting-edge tech we analyze your community’s data to improve trial design and chances of success.
Be part of multiple research efforts, without leaving home
Your community’s de-identified records can advance multiple treatment studies.

BENEFITS TO JOINING

What you’ll get along the way

Access your records

We do the work to collect all your records, at no cost, in your secure account. Access doctors’ notes you’ve never seen.

Learn from your community

See how your rare disease journey compares to others with your condition, and what’s helping.

Track your impact

We’ll send you exclusive updates on the studies you’re contributing to and how you’re driving forward research.

Join now

Our story

Onno Faber (Founder) & Nancy Yu (CEO)

AllStripes’ mission is to empower patients and communities to accelerate drug development for rare diseases. About 1 in 10 people have a rare disease, and half are children.

AllStripes (formerly RDMD) was co-founded in 2017 by CEO Nancy Yu and Onno Faber, a rare disease patient deeply frustrated by the drug development process.

“I was diagnosed with a rare genetic disease and it completely changed my perspective,” Onno shares. “Patients can’t be bystanders in drug development.”

As the first and only research platform dedicated to rare diseases, AllStripes makes it easy for patients to contribute to new treatment studies from home. We do the work to collect and analyze your de-identified medical records to help power faster, better drug development for your condition.

The name AllStripes was inspired by the official symbol for the rare disease community, the zebra. When we come together and learn from each other’s experiences we can push for better treatments across all rare conditions.

Our team

Onno Faber

Founder, Chairman

Nancy Yu

Co-founder and CEO

Leo Vandriel

Head of Engineering

Charlene Fernandez

Patient Operations Lead

Brenda Simpson

Clinical Abstraction Lead

Kristina Cotter, PhD, CGC

Research Director

Bernard Xie

Software Engineer

Brett Chung

Head of Product

Talea Miller

Head of Content and Brand Marketing

Kevin Yao

Software Engineer

Lydia Kats

Software Engineer

Alyssa Carlson

Clinical Information Associate

Stephanie Fischer

Patient Advocacy and Partnerships Director

Maya Lila

Software Engineer

Melissa McLean

Design Director

Sierra Roth

Executive Assistant and Office Manager

Caitlin Nichols, PhD

Scientific Affairs and Research Manager

Geo Guidetti

Software Engineer

David Mayer

VP Operations

Angela Jocson

Project Manager

Evan Snyder

Software Engineer

Zainab Yusuf

Operations Associate

Eugenio Oddone

Software Engineer

Nehan Nadeem

Operations Associate

Dione Kobayashi, PhD

Scientific Advisor

Gregory Enns, MD

Medical Advisor

Jill Hagenkord, MD, FCAP

Medical Advisor

Caitlin Collins

Advisor

Tristen Moors

Clinical Operations Advisor

Brian Irwin

Advisor

Matt Wilsey

Patient Advocacy Advisor

Join our team

We are determined to build a strong company around our mission, and be able to invest in as many diseases as we can to generate better outcomes for patients. We work as a team, help each other to be the best version or ourselves, promote open communication, learn from our mistakes, and do good in the world.

Account Executive

Business Operations Associate

Business Operations Manager

Lead Product Designer

Life Sciences Partnerships Manager

Operations Associate

Operations Manager

Project Manager

Rare Disease Clinical Abstractor (Part Time, Remote)

Real-World Data Scientist

Research Compliance Manager / Director

Research Partnerships Director