Ambassador Stories
 • 
February 8, 2023

I Advocate Not Only For Melissa, But For All People With PA

It’s important us PA parents keep using our voices to push for more research.

by Kathy Stagni, as-told-to AllStripes

Latest blog posts

Stories for and by the rare disease community.
Isla sitting in a park on a green slide.
Two women sitting at a table having a conversation
Anna smiling at the camera
Photo shows Quinn standing in the middle of his father and mother, Dana
Large family standing front of a front door.
Chandler smiling and looking directly into the camera

Feeling More Me

November 14, 2022
  
Rare Life
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Research insights

Explore some of the recent AllStripes program research generated by our team of experts.
Preview of PDFPreview of PDF
Characterizing the diagnostic journey of patients with GM1 gangliosidosis using real-world data
November 2022
  
Research posters
Preview of PDFPreview of PDF
Characterizing the diagnostic journey of patients with GM2 gangliosidosis using real-world data
November 2022
  
Research posters
Preview of PDFPreview of PDF
Treatment Patterns for Depression and Anxiety Among Patients with Progressive Supranuclear Palsy (PSP)
August 2022
  
Research posters
Preview of PDFPreview of PDF
Characterizing rare disease healthcare utilization using a real-world data platform
May 2022
  
Research posters
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