Ambassador Stories
 • 
January 12, 2022

Dreams of Motherhood, Deferred

As the founder of Sickle Cell Reproductive Health Education Directive, I’m fighting to end disparities and offer resources I wish I'd been able to access earlier on my infertility journey.
A black-and-white headshot of Teonna Woolford, looking straight at the camera with a restaurant in the background.

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Stories for and by the rare disease community.
Matthew, who is 11, looks directly in the camera with a calm expression. He's wearing a zebra headband and a navy-blue shirt.
A photo of Christina with her husband, Ezra and her daughter.
Melissa and Dean surround their daughter, Haley, who is wearing a blue jacket and a purple top.
Marlin stands with his family in a desert.
Sylvia and her mother smile with their heads pressed together, in a room with red walls.
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Research insights

Explore some of the recent AllStripes program research generated by our team of experts.
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JCS Article: Patient Engagement and Real-World Data Drive Innovation in Orphan Disease Drug Development
December 2021
  
Research publication
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Genetic Testing Patterns in SLC6A1-related Disorders
December 2021
  
Research poster
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Flexible while familiar: a practical application of a non-exceptionalist approach to social media recruitment in rare disease research
November 2021
  
Research poster
Insights preview image
Engaging rare disease patients and caregivers in research through a two-sided technology platform
October 2021
  
Research poster

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