From Italy to Holland, One Step at a Time
by Aditya Shah, Chief of Staff
Our world had turned upside down, our ground had shifted below us, and we were trying to grasp at anything to hold on to.
Now, I Understand My Dad in a Way I Never Have Before
By Taylor Kane
Reading through my dad’s ALD-related medical records helped me paint a much clearer picture of what my family went through all those years ago.
My Son Graham
By Erin Smith, Director, Community Success & Patient Engagement
It’s perhaps my greatest honor that while I lost Graham physically, I carry him every day to work with me.
My Medical Binder, My Rare Diagnosis — and Everything After
By Mackenzie Abramson
Because of what I’ve been through as a rare patient, I’m driven to help people facing similar challenges.