Now, I Understand My Dad in a Way I Never Have Before
By Taylor Kane
Reading through my dad’s ALD-related medical records helped me paint a much clearer picture of what my family went through all those years ago.
My Son Graham
By Erin Smith, Director, Community Success & Patient Engagement
It’s perhaps my greatest honor that while I lost Graham physically, I carry him every day to work with me.
My Medical Binder, My Rare Diagnosis — and Everything After
By Mackenzie Abramson
Because of what I’ve been through as a rare patient, I’m driven to help people facing similar challenges.