Staff Stories

Blog posts

Isla sitting in a park on a green slide.

From Italy to Holland, One Step at a Time

by Aditya Shah, Chief of Staff
Our world had turned upside down, our ground had shifted below us, and we were trying to grasp at anything to hold on to.
Taylor's dad lies in a bed with a young Taylor. On a tray table between them, Taylor colors.

Now, I Understand My Dad in a Way I Never Have Before

By Taylor Kane
Reading through my dad’s ALD-related medical records helped me paint a much clearer picture of what my family went through all those years ago.
A cute smiling baby on a gray chair, surrounded by wooden trains that spell out "Graham." A chalkboard says "July 17, 2014, 4 months."

My Son Graham

By Erin Smith, Director, Community Success & Patient Engagement
It’s perhaps my greatest honor that while I lost Graham physically, I carry him every day to work with me.
Mackenzie wears a blue shirt with the AllStripes logo (white and red stripes in a boomerang shape) and a smile. She's facing the camera and holding a thick binder.

My Medical Binder, My Rare Diagnosis — and Everything After

By Mackenzie Abramson
Because of what I’ve been through as a rare patient, I’m driven to help people facing similar challenges.

The Personal Stories That Motivate the AllStripes Team to Fight for the Rare Disease Community

In honor of Rare Disease Day, we’re sharing a behind-the-scenes look at what inspires AllStripes staff members to push for advancements in rare disease research.
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