8 Insights from the Global Genes RARE Patient Advocacy Summit

PostedOctober 12, 2021 · 3 minute read

A roundup of thoughtful and energetic takeaways, courtesy of our AllStripes Ambassadors.

By AllStripes

Late last month, AllStripes sponsored 13 of our AllStripes Ambassadors to attend the Global Genes RARE Patient Advocacy Summit. This group of community members affected by rare disease networked, attended panels and chats and took to social media to share their insights. To learn a little bit more about what this was like, check out a roundup of these AllStripes Ambassadors’ takeaways below.

1. The rare disease community is vast

Olivia @theoliviaviola

2. Listening to others’ stories is powerful

Maria @Citywithchair

3. Collaboration and support are essential

Lindsey @edwards_linds

4. Passionate, authentic storytelling makes a difference

Kimberley @KimSteeleMD

5. A patient isn’t just anatomy to study

Lindsey @edwards_linds

6. Newfound knowledge can mean newfound comfort

Amy @hygienie1

7. The excitement of attending the summit

Sherman @harleysargo

8. When waking up at 4 a.m. is worth it

Maria @Citywithchair

For more information on AllStripes, you can visit our website at allstripes.com.


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