UpdatedOctober 9, 2020 · 3 minute read
Gradually, PSP patients can have trouble completing everyday activities. Here’s a compiled list of items that PSP community members have shared.
By Angela Jocson
Progressive supranuclear palsy (PSP) is a neurodegenerative disorder that affects movement, vision, speech, swallowing, personality, and cognition. PSP worsens with time, and patients will eventually experience slow, stiff movements that make walking difficult or impossible. Gradually, patients can have trouble completing everyday activities. As the disease progresses, it is important for both the patient and caregiver to be equipped with tools and resources to make managing PSP and its symptoms a little bit easier.
Members within our PSP community shared their insights on items that can be helpful for daily activities, such as:
Are any of these items relevant to you? We would love to hear feedback and add to this resource to spread awareness and resources for the PSP community and beyond. If you are a patient, or family member of a patient, with PSP and are interested in contributing to this list email us at firstname.lastname@example.org.
Special thanks to PSP advocates Tim Brown and Patrick Dixon who have been amazing resources to help the AllStripes team better understand the experience of individuals living with PSP and caring for them.
Tim Brown, an AllStripes Ambassador, created The PSP Chronicles to document his strength and positive approach to life despite his PSP diagnosis. You can read more about Tim and his inspiring story, The PSP Chronicles, at www.timbrownauthor.com.
Patrick Dixon, the author of HeHo, dedicated the proceeds from his book to CurePSP, in honor of his mother who had PSP. In HeHo, Patrick describes his six-month hike from Mexico to Canada along the Continental Divide Trail. You can learn more about Patrick’s book at www.goodreads.com/book/show/54010278-heho.