Last month, we asked the rare disease community to post a #RareSnapshot in honor of this year’s Rare Disease Day. The campaign was introduced with a video featuring three of our Ambassadors — Lindsey, Maria and Jessica — showcasing a snippet from a day in their lives. For over a week, the community rallied together to share photos from their rare journeys. These photos are varied and nuanced, and they highlight powerful moments of frustration, joy, sadness, friendship, awareness and advocacy.
We’re grateful to everyone who contributed their #RareSnapshot, and to everyone who works hard spreading awareness and advocating all year round.