The COVID-19 pandemic heightened many significant challenges the rare disease community already faces on a regular basis, including physical isolation, inability to access necessary health care and therapies, and feelings of fear and anxiety about the future.
With this in mind, the Cambridge Rare Disease Network (CRDN) is holding a free global festival, RAREfest20, to engage and educate rare disease patients and families, students, healthcare professionals, researchers and anyone else who would like to attend!
AllStripes is excited to be a media partner for RAREfest20. The festival, which takes place on November 28th, is no ordinary event. RAREfest20 promises to be a “virtual feast,” featuring day-long interactive exhibits displaying developments in science and technology, as well as art and films. The mission of RAREfest20 is to spark curiosity, challenge perceptions, showcase science, inspire innovation, and give a voice to rare disease patients and their families.
In addition to interactive exhibits, the event will also feature speakers and patient voices. One of these patient voices will be AllStripes’ co-founder, Onno Faber. Onno will be representing both the patient and industry perspectives, and communicating the importance of empowering patients and communities to accelerate drug development for rare diseases.
Among the many other speakers are Dr. Giles Yeo, principal research associate at the MRC Institute of Metabolic Science; Adam Pearson, presenter, actor, and disability rights campaigner; and Dana Perella, founder of Cookies4Cures. Attendees will be able to participate in live Q&As and chat rooms to engage with the speakers and other attendees.
AllStripes will also have a research poster feature in RAREfest20’s virtual film and poster gallery describing how the AllStripes platform can empower research across rare conditions.
CRDN is headquartered in the UK, but the virtual nature of RAREfest20 makes the festival accessible to rare disease patients and families around the world. For more information, and to get your free ticket, head to camraredisease.org/rarefest20.