Identifying gaps in access to research in patients with rare diseases using a real-world data platform
Patients with rare diseases face multiple barriers to care and research opportunities, including long travel distances to specialists or clinical trials. See how AllStripes’ real-world data (RWD) platform can be used to assess travel burden among individuals with neurofibromatosis type 2 (NF2) and chronic inflammatory demyelinating polyneuropathy (CIDP). This poster was presented at the 2020 American College of Medical Genetics (ACMG) Annual Clinical Genetics Meeting in April 2020.
Treatment Patterns for Depression and Anxiety Among Patients with Progressive Supranuclear Palsy (PSP)