Identifying gaps in access to research in patients with rare diseases using a real-world data platform

Patients with rare diseases face multiple barriers to care and research opportunities, including long travel distances to specialists or clinical trials. See how AllStripes’ real-world data (RWD) platform can be used to assess travel burden among individuals with neurofibromatosis type 2 (NF2) and chronic inflammatory demyelinating polyneuropathy (CIDP). This poster was presented at the 2020 American College of Medical Genetics (ACMG) Annual Clinical Genetics Meeting in April 2020.