Powering rare disease R&D
AllStripes engages patients and life science partners to deliver the most comprehensive real-world datasets and insights available.

The industry-leading research platform dedicated to rare disease
50+
Launched rare disease programs
250,000+
Medical records received
12,000+
Total years of patient data collected
35+
Number of specialties represented
Partnering with
50+
patient advocacy groups
Medical records from
3,900+
facilities
Spanning average
8+
years per patient
We can help you tackle your biggest research challenges
Through AllStripes' two-sided platform, we enable life science partners to generate regulatory-grade, real-world evidence and empower patients to contribute their longitudinal medical records to research.

For patients
Centralized, digitized medical records
Every participant who joins an AllStripes research program receives their (or their loved one's) medical records in a secure account, at no cost. We do all the work to make this a quick and easy process — no appointments, no uploads. Platform benefits include:
- Web and mobile sign up with AllStripes' virtual support
- Clear eConsent under WIRB-Copernicus Group central IRB
- Comprehensive capture of medical records from any medical facility spanning a patient’s history in the US, Canada and UK
- User-friendly patient portal to access and benefit from records on any device
- Advanced patient/caregiver survey capabilities
- Recontact for future studies, trials and events

For life sciences
Regulatory-grade evidence for your research program
Our real-world data and insights are obtained directly from longitudinal medical records to accelerate your program across its entire lifecycle. Platform benefits include:
- End-to-end study plan and protocol development
- Fully managed patient privacy and consent
- Ability to access and store clinical source documents from any facility, without need for site startup
- Flexibility to enable multiple research questions and use cases over time
- Regulatory-grade quality management system, compliance and controls
- Ability to recontact patients for future studies and events, via AllStripes
Our offerings for life science partners
Natural history
Regulatory-grade data and insights detailing disease progression from pre-diagnosis through management.
Includes:
- Consultation with AllStripes research team on study plan development
- 20 clinical modules and 1 survey series targeting your key research questions

Patient journey
Deep insights to track each stage of the patient journey from pre-diagnosis through management.
Includes:
- 3 patient case studies, highlighting key steps of the patient journey
- Insights for each stage of the patient journey derived from 15 standard clinical modules

Burden of illness
Evidence of overall disease costliness focusing on health care resource utilization.
Includes:
- Health care utilization metrics derived from 10 standard clinical modules
- Characterization of burden of illness and quality of life provided from a standard AllStripes survey

Community engagement
Opportunities to better engage patients, foundations and investigators.
Includes:
- Sponsorship of a poster and report utilizing 5 standard clinical modules and 2 surveys
- Feature as a partner on blog posts, social media and email newsletter
- Recruitment and educational opportunities

Our approach
We partner with leading life science companies to accelerate
rare disease research timelines and ultimately improve patient care.
Here's an overview of our end-to-end approach:
rare disease research timelines and ultimately improve patient care.
Here's an overview of our end-to-end approach:
Activation & recruitment
AllStripes activates a condition-specific research program on our platform and recruits participants to sign up through a multi-channel approach. We use a virtual or "site-less" model to enable a 2-week study start-up and access to a broader, more diverse patient population — while reducing the overall burden on patients and caregivers.
Consenting participants
Through the platform, participants eConsent to research on their de-identified information and authorize AllStripes to retrieve medical records from their facilities. Our centralized IRB protocol and research consent enables broad research topics and re-contact for future studies.
Retrieving records for the community
Our team collects and digitizes medical records for each participant. Records are shared in a private, secure account to help participants have a complete view of their care history, spanning over 35 specialties, including neurology, genetics, labs, PT/OT/ST and imaging. We do all the legwork, eliminating the burden on patients.
Structuring de-identified data
AllStripes retrieves and stores all source documents, including unstructured physician notes. We then de-identify records and structure the clinical data gathered in standardized industry formats. Our advanced technology, paired with trained clinical abstraction professionals, enables us to extract key outcomes of clinical progression and quality of life to address critical research questions.
Delivering insights for your study
Once data is abstracted and quality reviewed, life science partners can access de-identified data and analyses. The AllStripes research team, consisting of PhDs, epidemiologists and genetic counselors will assist with additional analyses to help you derive the most value from the data — helping to ensure that your study objectives are met.
WHY ALLSTRIPES
The go-to partner for rare disease research
Through our end-to-end global research platform, we're advancing rare disease treatments by providing you with the evidence you need to power your study. Advantages of partnering with AllStripes include:
- Unparalleled expertise in rare disease RWE
- Dedicated research and data analysis team
- Trusted brand & strong patient value
- Multi-channel approach to patient recruitment
- Longitudinal EHR data across all encounters with access to unstructured notes
- Site-less approach offers flexibility and speed to data
- Advanced ePRO / survey capabilities
- Regulatory-grade data and controls

Commonly asked questions
How does AllStripes’ platform work?
What are the benefits of partnering with AllStripes?
How does AllStripes engage with patients and gather patient records?
How will patient data be used and who owns it?
How does AllStripes protect patient privacy?
Can the data AllStripes collects be used to support regulatory submissions?
How is AllStripes different from a registry?
What are the typical timelines for recruiting patients for a specific condition? How long does it take to collect the medical records for participants?
What processes and procedures do you have in place to ensure quality and regulatory compliance?
Who can I contact for more information?
Research insights
Latest press releases
Ready to transform your approach to generating real-world data for rare disease research? Let’s chat.
Join leading life science companies in making AllStripes their
trusted rare disease research partner
trusted rare disease research partner


