Together, we can unlock new research for your community
Community AllStripes Ambassadors showing their stripes.
Partner with AllStripes to drive research and provide unique benefits.
For families
Centralized, digitized medical records
Every participant who joins an AllStripes research program receives their (or their loved one's) medical records in a secure account, at no cost. We do all the work to make this a quick and easy process – no appointments, no uploads.
For your ORGANIZATION
Regulatory-grade database and new research insights
AllStripes can act as a registry, or complement an existing registry. We create deep, regulatory-grade data and insights that can attract new industry interest, and power your foundation’s research and education efforts.
For the community
Opportunities to grow awareness and share their stories
Our team creates compelling content and resources that raise awareness for your focus condition. We spotlight the experiences of your community through our Ambassador Program, blog content and social media events.
As the leading research platform dedicated to rare disease, AllStripes is transforming treatment research
“AllStripes gathered more than 7,000 records from the U.S. and Canada for Sanfilippo and within a matter of months generated research posters presented at scientific conferences. The best part is patients didn’t have to pick up the phone, AllStripes did all the legwork behind this process.”
Dr. Cara O'Neill
Co-Founder and Chief Science Officer of Cure Sanfilippo
“AllStripes is so important for our community because it can jumpstart new research, and make it faster and more effective.”
MANDY SELLARS
Chair of Genetic Overgrowth PI3K Support
How AllStripes partners with foundations
Jumpstarting research
An AllStripes program can attract more treatment research interest to your focus condition. Our foundation partners tap into our launch resources, unique co-branding opportunities and dedicated program managers to recruit participants.
Collecting records for your community
Our team collects and digitizes medical records for each participant who joins and signs our research consent and authorization. Records are shared in a private, secure account to help participants have a complete view of their care. There is no cost to patients or patient advocacy organizations.
Delivering new insights
Our team de-identifies the community’s records, and aggregates and analyzes the information to deliver insights reports to our foundation partners – from demographics, to symptoms, to utilization of care. View an example report >
Powering research
Each AllStripes program becomes a regulatory-grade database of new knowledge for a range of research activities, such as:
- Creating a natural history study
- Determining effective endpoints for trials
- Supporting work to add a condition to newborn screening
- Supporting FDA submissions
AllStripes will work to attract as many researchers as possible to each condition, and no partner ever gets exclusive access.
Our 50+ patient advocacy partners represent 50+ individual condition communities
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Let’s work together to unlock new treatments
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Research insights
Explore some of the recent AllStripes program research generated by our team of experts.
