Managing the medical care of 3 kids is a juggling act, but AllStripes brings all the information together to give me peace of mind.
Managing the medical care of 3 kids is a juggling act, but AllStripes brings all the information together to give me peace of mind. I am hopeful that the new insights AllStripes brings can lead research to treatments and a cure!
Jessie
,
mother of 3 kids with CCM3
Managing the medical care of 3 kids is a juggling act, but AllStripes brings all the information together to give me peace of mind.
Managing the medical care of 3 kids is a juggling act, but AllStripes brings all the information together to give me peace of mind. I am hopeful that the new insights AllStripes brings can lead research to treatments and a cure!
Jessie
,
mother of 3 kids with CCM3
AllStripes gives us hope for our child’s future.
Dinah
,
CCM3 Ambassador
I have long feared that misdiagnosis would be tragic and easy without good information, but AllStripes can help alleviate this fear.
I have long feared that misdiagnosis would be tragic and easy without good information, but AllStripes can help alleviate this fear. I am grateful for all the help new research and good medicine will bring about in the near future.
Charles
,
CCM3 Ambassador
I believe that with the help of AllStripes we can find new ways to help people with CCM3, like me, and shed some light on the disease.
Kristen
,
CCM3 Ambassador

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Research participants
needed
Help reach this goal to jumpstart the research program! More participants can join at any time to make research even stronger.
The first recruitment goal has been met! But we encourage more participants to join to make this research as strong as possible.

Be part of the AllStripes program for

CCM3 syndrome

cerebral cavernous malformation 3

Your experience with
CCM3 syndrome
is important and can help researchers advance treatments for your community.
By joining AllStripes, you can contribute your de-identified medical records to multiple research efforts for
CCM3 syndrome
without leaving home. We do the work to collect your information, and you’ll receive all your records in your secure account, at no cost.
Our partners for this research program

Learn more about

CCM3 syndrome

CCM3 syndrome is a genetic condition characterized by the development of abnormal mulberry-shaped blood vessels in the brain and spinal cord. These leaky blood vessels, called cavernous angiomas (CCAs), lead to an increased risk of seizures and cerebral hemorrhage. CCM3 syndrome also increases risk of benign brain tumors and scoliosis.
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Active research studies

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Benefits to joining

Power to the patients

Benefits to joining

Have a voice in research

Your de-identified records, and your input through surveys, can help guide treatment research.

Access your medical records

We collect your records, at no cost, in your secure account. View doctors’ notes and your care journey.

Learn from your community

Receive updates on your research impact.

How it works

1. Sign up

In just 15-20 minutes, create your private account, authorize us to get to work on your behalf, and share the names of your health facilities. No appointments, no uploads.

2. We get to work

The AllStripes team does the work to collect your records, at no cost, in your secure account. Access doctors’ notes you may have never seen and view your care journey.

3. Power research

Our team de-identifies your records by removing information like name and address, and analyzes your community’s data to help jumpstart or speed up new treatment research.

AllStripes FAQs for patients and caregivers

Privacy and data ownership

AllStripes Research is approved and monitored by an independent ethics review board called WIRB (Western Institutional Review Board). WIRB is a group of people who review research studies to protect the rights and welfare of human subjects. They provide in-depth regulatory expertise to support development of research protocols and documentation. Read more.

Access your records, drive research