I joined AllStripes because my doctors need access to all of my medical records before they can make the best decisions about my care.
Deborah
,
Ambassador for DM
I joined AllStripes because my doctors need access to all of my medical records before they can make the best decisions about my care.
Deborah
,
Ambassador for DM
I joined AllStripes because I believe we all can contribute and work to improve better awareness, diagnosis and treatment of dermatomyositis.
Benita
,
Ambassador for DM
​DM taught me that life happens for me, not to me. I've been humbled — not defeated — and believe that DM expanded my grit and resilience.
Mike
,
dermatomyositis Ambassador
I joined AllStripes to help raise awareness and hopefully help find better treatment options for us patients.
Claire
,
Ambassador for dermatomyositis
I have been living with dermatomyositis (DM) for over 19 years. It's empowering to be a part of cutting-edge research from home. I can now easily make a difference in the future of DM research.
Jerry
,
ambassador for dermatomyositis
I am an expert in dermatomyositis because I have lived with it for 7 years. My data can help unlock new treatments to improve the lives of others who are suffering from this disease.
Lynn
,
dermatomyositis ambassador

69

/

50

Research participants
needed
Help reach this goal to jumpstart the research program! More participants can join at any time to make research even stronger.
The first recruitment goal has been met! But we encourage more participants to join to make this research as strong as possible.

Be part of the AllStripes program for

dermatomyositis

Your experience with
dermatomyositis
is important and can help researchers advance treatments for your community.
By joining AllStripes, you can contribute your de-identified medical records to multiple research efforts for
dermatomyositis
without leaving home. We do the work to collect your information, and you’ll receive all your records in your secure account, at no cost.
Our partners for this research program

Learn more about

dermatomyositis

Dermatomyositis is an inflammatory condition that causes muscle inflammation, progressive weakness and skin rashes. Some individuals also experience problems with the heart and lungs. Dermatomyositis is part of a larger group of inflammatory muscle conditions (inflammatory myopathies) that includes polymyositis.

Active research studies

No items found.

Benefits to joining

Power to the patients

Benefits to joining

Have a voice in research

Your de-identified records, and your input through surveys, can help guide treatment research.

Access your medical records

We collect your records, at no cost, in your secure account. View doctors’ notes and your care journey.

Learn from your community

Receive updates on your research impact.

How it works

1. Sign up

In just 15-20 minutes, create your private account, authorize us to get to work on your behalf, and share the names of your health facilities. No appointments, no uploads.

2. We get to work

The AllStripes team does the work to collect your records, at no cost, in your secure account. Access doctors’ notes you may have never seen and view your care journey.

3. Power research

Our team de-identifies your records by removing information like name and address, and analyzes your community’s data to help jumpstart or speed up new treatment research.

AllStripes FAQs for patients and caregivers

Privacy and data ownership

AllStripes Research is approved and monitored by an independent ethics review board called WIRB (Western Institutional Review Board). WIRB is a group of people who review research studies to protect the rights and welfare of human subjects. They provide in-depth regulatory expertise to support development of research protocols and documentation. Read more.

Access your records, drive research

Search for something