I wanted to join a community looking to fight IBM by supporting research to show that I'm more than this disease, and I prove it every single day.
Scott
,
IBM Ambassador
I wanted to join a community looking to fight IBM by supporting research to show that I'm more than this disease, and I prove it every single day.
Scott
,
IBM Ambassador
I was first diagnosed with IBM in 2012 and am delighted to join AllStripes in order to bring wider attention to IBM and further research.
David
,
advocate for the IBM community
When like-minded people come together to create awareness for IBM, nothing is unachievable.
Blaine
,
IBM Ambassador
AllStripes gives us an opportunity to be more involved in a research program. AllStripes allows the cross-reference of your medical records to do research.
Randy
,
IBM Ambassador
I see AllStripes as a secure, patient-powered accelerator to help find better treatments fo IBM.
Manuel
,
IBM Ambassador
The goal is for researchers to have access to complete data packages for patients.
Lynn
,
IBM Ambassador
"I wanted to be part of AllStripes and become an Ambassador to do all I can for research to cure rare diseases such as my disease, sporadic inclusion body myositis."
Craig
,
IBM Ambassador

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Research participants
needed
Help reach this goal to jumpstart the research program! More participants can join at any time to make research even stronger.
The first recruitment goal has been met! But we encourage more participants to join to make this research as strong as possible.

Be part of the AllStripes program for

IBM

inclusion body myositis

Your experience with
IBM
is important and can help researchers advance treatments for your community.
By joining AllStripes, you can contribute your de-identified medical records to multiple research efforts for
IBM
without leaving home. We do the work to collect your information, and you’ll receive all your records in your secure account, at no cost.

Learn more about

IBM

Inclusion body myositis (IBM) is an inflammatory muscle disease. It is the most common muscle disease in patients over the age of 50. Patients with IBM experience muscle weakness and muscle wasting that slowly gets worse over time. The thigh muscles (quadriceps) and muscles in the fingers, wrists, and forearms are often most affected.
Categories:

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Benefits to joining

Power to the patients

Benefits to joining

Have a voice in research

Your de-identified records, and your input through surveys, can help guide treatment research.

Access your medical records

We collect your records, at no cost, in your secure account. View doctors’ notes and your care journey.

Learn from your community

Receive updates on your research impact.

How it works

1. Sign up

In just 15-20 minutes, create your private account, authorize us to get to work on your behalf, and share the names of your health facilities. No appointments, no uploads.

2. We get to work

The AllStripes team does the work to collect your records, at no cost, in your secure account. Access doctors’ notes you may have never seen and view your care journey.

3. Power research

Our team de-identifies your records by removing information like name and address, and analyzes your community’s data to help jumpstart or speed up new treatment research.

AllStripes FAQs for patients and caregivers

Privacy and data ownership

AllStripes Research is approved and monitored by an independent ethics review board called WIRB (Western Institutional Review Board). WIRB is a group of people who review research studies to protect the rights and welfare of human subjects. They provide in-depth regulatory expertise to support development of research protocols and documentation. Read more.

Access your records, drive research

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