I joined AllStripes to be an advocate for sarcoidosis. I have systemic sarcoidosis, and my symptoms and pain aren't visible.
Ms. Gee
,
Sarcoid Warrior
I joined AllStripes to be an advocate for sarcoidosis. I have systemic sarcoidosis, and my symptoms and pain aren't visible.
Ms. Gee
,
Sarcoid Warrior
I joined AllStripes to help educate those who have never heard of my rare disease, sarcoidosis. We are rare, and we are here.
Lillian M. Greene
,
participant in the sarcoidosis research program
By teaming up with AllStripes, I can be a part of the change that I hope to see in the advancement of sarcoidosis research.
Allison
,
Ambassador who lives with and advocates for sarcoidosis
I joined AllStripes because research is so crucial for sarcoidosis patients. My motto is: I have sarcoidosis, but it doesn't have me!
Frank
,
President of Sarcoidosis of Long Island
I want to help people avoid lengthy, frustrating diagnostic experiences by advocating for the dire need to prioritize sarcoidosis research.
Jessica
,
Ambassador & warrior for sarcoidosis
I joined AllStripes to continue to be a voice for those whose voices can’t be heard!
Chasta
,
no longer surviving but THRIVING with sarcoidosis
I joined AllStripes because they can empower patients to take control of their health care.
Michael
,
sarcoidosis Ambassador

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Research participants
needed
Help reach this goal to jumpstart the research program! More participants can join at any time to make research even stronger.
The first recruitment goal has been met! But we encourage more participants to join to make this research as strong as possible.

Be part of the AllStripes program for

sarcoidosis

Your experience with
sarcoidosis
is important and can help researchers advance treatments for your community.
By joining AllStripes, you can contribute your de-identified medical records to multiple research efforts for
sarcoidosis
without leaving home. We do the work to collect your information, and you’ll receive all your records in your secure account, at no cost.

Learn more about

sarcoidosis

Sarcoidosis is a rare inflammatory disease that causes small lumps of cells, called granulomas, to develop and grow in various parts of a person’s body. This can lead to scarring (fibrosis) and problems with organ function over time, which can make the condition much more serious. The lungs are most commonly affected by sarcoidosis, but many other organs may also be affected.

Active research studies

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Benefits to joining

Power to the patients

Benefits to joining

Have a voice in research

Your de-identified records, and your input through surveys, can help guide treatment research.

Access your medical records

We collect your records, at no cost, in your secure account. View doctors’ notes and your care journey.

Learn from your community

Receive updates on your research impact.

How it works

1. Sign up

In just 15-20 minutes, create your private account, authorize us to get to work on your behalf, and share the names of your health facilities. No appointments, no uploads.

2. We get to work

The AllStripes team does the work to collect your records, at no cost, in your secure account. Access doctors’ notes you may have never seen and view your care journey.

3. Power research

Our team de-identifies your records by removing information like name and address, and analyzes your community’s data to help jumpstart or speed up new treatment research.

AllStripes FAQs for patients and caregivers

Privacy and data ownership

AllStripes Research is approved and monitored by an independent ethics review board called WIRB (Western Institutional Review Board). WIRB is a group of people who review research studies to protect the rights and welfare of human subjects. They provide in-depth regulatory expertise to support development of research protocols and documentation. Read more.

Access your records, drive research