I joined AllStripes so I can help support research into rare diseases, as well as bring attention to those who live every day with a rare disease.
Sean
,
wAIHA Ambassador
I joined AllStripes so I can help support research into rare diseases, as well as bring attention to those who live every day with a rare disease.
Sean
,
wAIHA Ambassador
To get more information about my condition, and hopefully help others through sharing my experiences.
Rosie
,
who lives with warm autoimmune hemolytic anemia
No one should have to wait until they are about to die to be taken seriously
Vickie
,
wAIHA Ambassador
I was diagnosed a year ago, and joined AllStripes to do my part in furthering research and treatment. Every piece of information is so important, and can help so much!
Denée
,
Ambassador for wAIHA

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Research participants
needed
Help reach this goal to jumpstart the research program! More participants can join at any time to make research even stronger.
The first recruitment goal has been met! But we encourage more participants to join to make this research as strong as possible.

Be part of the AllStripes program for

wAIHA

warm autoimmune hemolytic anemia

Your experience with
wAIHA
is important and can help researchers advance treatments for your community.
By joining AllStripes, you can contribute your de-identified medical records to multiple research efforts for
wAIHA
without leaving home. We do the work to collect your information, and you’ll receive all your records in your secure account, at no cost.

Your experience with wAIHA is important and can help researchers advance treatments for your community. 

By joining AllStripes, you can contribute your de-identified medical records to multiple research efforts for wAIHA without leaving home. The first research project is a partnership with Annexon Biosciences to support their phase 2 clinical study. By joining AllStripes, you may be notified if you are eligible to participate in their study. The information you provide can also help power additional future research studies for wAIHA. 

We do the work to collect your information, and you’ll receive all your records in your secure account, at no cost.


Our partners for this research program

Learn more about

wAIHA

Warm autoimmune hemolytic anemia (wAIHA) is an autoimmune condition that causes a person’s immune system to create antibodies that attack red blood cells. This leads to anemia, which is a shortage of red blood cells carrying oxygen throughout the body. Anemia can cause symptoms such as fatigue, muscle weakness, shortness of breath while exercising, abnormal paleness of the skin, and palpitations.
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Active research studies

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Benefits to joining

Power to the patients

Benefits to joining

Have a voice in research

Your de-identified records, and your input through surveys, can help guide treatment research.

Access your medical records

We collect your records, at no cost, in your secure account. View doctors’ notes and your care journey.

Learn from your community

Receive updates on your research impact.

How it works

1. Sign up

In just 15-20 minutes, create your private account, authorize us to get to work on your behalf, and share the names of your health facilities. No appointments, no uploads.

2. We get to work

The AllStripes team does the work to collect your records, at no cost, in your secure account. Access doctors’ notes you may have never seen and view your care journey.

3. Power research

Our team de-identifies your records by removing information like name and address, and analyzes your community’s data to help jumpstart or speed up new treatment research.

AllStripes FAQs for patients and caregivers

Privacy and data ownership

AllStripes Research is approved and monitored by an independent ethics review board called WIRB (Western Institutional Review Board). WIRB is a group of people who review research studies to protect the rights and welfare of human subjects. They provide in-depth regulatory expertise to support development of research protocols and documentation. Read more.

Access your records, drive research

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