Study With Novartis Pharmaceuticals Corporation

What is the natural progression of PROS (PIK3CA-related overgrowth spectrum)?
Recruitment goal
100
participants
Launched in
2021
Status
Active
Image
Partner logo

Overview

This research will aim to help improve clinical understanding of the natural history and disease progression of conditions related to a mutation in the PIK3CA gene. Natural history is the way a condition develops over time. Researchers will focus on a number of factors, including assessing what current treatments and interventions are helping families manage these conditions, and any associated complications. They will also look at use of healthcare services and resources by patients and caregivers affected by PROS.

Study goal

The goal of this study is to understand the patient journey and natural history of PROS conditions.

Research partners

About AllStripes

AllStripes is a platform that makes it easy for rare disease patients and caregivers to contribute to drug development research from home.

AllStripes improves the speed and design of drug trials by extracting and analyzing research-grade data from de-identified medical records, creating a pool of new knowledge about each rare condition.

Access your records, drive treatment research

Search for something